News and blog

Latest news and blogs from Sue Ryder.

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Human Rights Day Hashtag

Human Rights Day 2019

Today is Human Rights Day, a day that celebrates the adoption of the Universal Declaration of Human Rights in 1948. In her latest blog, our Human Rights Lead, Jacqui Graves, explains how we are asking party leaders to commit to protecting human rights in the UK.

A nurse and patient holding hands

'You as a human being can make a difference' Breaking the news of a terminal illness

When someone is diagnosed with a terminal illness, how do you break the news to them and their family? Dr Paul Perkins, Chief Medical Director, explains in his blog that there are no right or wrong answers, and it's the human connection which counts.

A carer sitting down with the person they are looking after at home

How can an understanding of human rights help carers?

Today, on Carers Rights Day, our Human Rights Lead Jacqui Graves highlights the rights of carers looking after people with life-limiting conditions and how they can ensure their rights are respected and protected.

Image of patient with Sue Ryder nurse and doctor

NICE guideline for end of life care: a major step change or well-intentioned but undeliverable at current levels of funding?

Today, Wednesday 16 October 2019, the National Institute for Health and Care Excellence (NICE) launch their new guideline for organising and delivering end of life care services for adults. Sue Ryder’s Policy and Public Affairs Officer Niamh Buckingham reports on the difference it could make to the people we care for

7 in 10 people haven't discussed their death with loved ones infographic

Silence is deadly: stigma attached to 'the D-word' means Brits are missing out on a better death

Whilst Brits know how they would spend their last days on earth, few are preparing for them, our new survey has revealed. As a result of this, we are calling on the nation to start talking about death.

A panel comprising human rights experts (left to right) Tor Butler-Cole QC, Richard Harding, Sanchita Hosali and Jacqui Graves answered questions.

Our Human Rights in End of Life Care Conference: a retrospective

Sue Ryder hosted a free conference on human rights in end of life care on Thursday 27th June 2019 in London, exploring further how applying a human rights approach to practice can help deliver person-centred and compassionate care.

A What Matters to Me training workshop

Sharing learnings from What Matters to Me: A Human Rights Approach to End of Life Care

Jacqui Graves, Human Rights Lead at Sue Ryder shares her experience and learnings of implementing the training programme to date.

Dee View Court Nurses discuss a patient

"No decision about me without me": why families must be involved in 'do not resuscitate' orders

Yesterday’s Daily Telegraph reported that, according to NHS nurses, too many patients are being subjected to Do Not Attempt Resuscitation (DNAR) orders without families being told. Our Human Rights Lead Jacqui Graves provides the important clinical context behind the headlines.

A Sue Ryder The Chantry Neurological Care Centre resident painting

It’s time to get it right for people with neurological conditions in England

People with neurological conditions in England are being let down by the very health and care systems that are supposed to be supporting them – that’s the finding of our new report Time to get it right, writes our Policy and Public Affairs Manager (England) Duncan Lugton.

Chantry resident Simon is helped into bed using a chair lift

Over 15,000 people with neurological conditions are being placed in nursing homes for the elderly, our shocking report reveals

Our new report, 'Time to get it right' published today, gives a comprehensive picture on how people with neurological conditions such as motor neurone disease, Parkinson’s disease, multiple sclerosis, Huntington’s disease and acquired brain injury are being let down by health and social services in England.