News and blog

Latest news and blogs from Sue Ryder.

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Image of patient with Sue Ryder nurse and doctor

NICE guideline for end of life care: a major step change or well-intentioned but undeliverable at current levels of funding?

Today, Wednesday 16 October 2019, the National Institute for Health and Care Excellence (NICE) launch their new guideline for organising and delivering end of life care services for adults. Sue Ryder’s Policy and Public Affairs Officer Niamh Buckingham reports on the difference it could make to the people we care for

Nursing Assistant Penny Jarvis

“My husband’s wish was to die at home. He wanted to be surrounded by his own things with his family and friends around him.”

Penny Jarvis’s husband Colin died in 2009, five years after he was first diagnosed with a rare degenerative brain disease. Penny was Colin’s main carer and he was able to die in his own home according to his wishes. Ten years on and Penny, a Nursing Assistant, now works as part of the Hospice at Home team at Sue Ryder South Oxfordshire Palliative Care Hub.

Jonathon, Richard and Simon Cox in their cycle helmets

Gloucestershire family take on 100-mile RideLondon-Surrey challenge for Sue Ryder Leckhampton Court Hospice

A family are challenging themselves to complete a 100-mile cycle to raise money for their local Sue Ryder Leckhampton Hospice, who supported their wife and mother when she died.

Kirsty with her mum Kathleen making a toast

“Mum and I didn’t know what Dad would have wanted for his funeral. Because of that, we talked about what Mum’s final wishes would be.”

Kirsty Hodgson’s mum Kathleen spent the last two weeks of her life at Sue Ryder Wheatfields Hospice in Leeds in August 2016. Here, she recounts their story and explains why they made plans were put in place for the end of her mum's life.

Valerie with her daughter Harriet

“Not all of us will have the opportunity to plan our death and I feel that, if you can, you should.”

Valerie Bevan, 69, was diagnosed with multiple sclerosis 26 years ago and now only has movement in her head and neck. She is a day patient at Sue Ryder Manorlands Hospice where her daughter Harriet works as a Community Fundraiser. This is her story in her own words.

7 in 10 people haven't discussed their death with loved ones infographic

Silence is deadly: stigma attached to 'the D-word' means Brits are missing out on a better death

Whilst Brits know how they would spend their last days on earth, few are preparing for them, our new survey has revealed. As a result of this, we are calling on the nation to start talking about death.

A panel comprising human rights experts (left to right) Tor Butler-Cole QC, Richard Harding, Sanchita Hosali and Jacqui Graves answered questions.

Our Human Rights in End of Life Care Conference: a retrospective

Sue Ryder hosted a free conference on human rights in end of life care on Thursday 27th June 2019 in London, exploring further how applying a human rights approach to practice can help deliver person-centred and compassionate care.

A What Matters to Me training workshop

Sharing learnings from What Matters to Me: A Human Rights Approach to End of Life Care

Jacqui Graves, Human Rights Lead at Sue Ryder shares her experience and learnings of implementing the training programme to date.

Miki Mitchell whose husband was cared for by Manorlands and the Queensbury Queens of the Mountain cycling club

“Dust off your bike and join us so that Manorlands can be there for more people like Chris.”

When she lost her husband Chris to cancer last October, Miki Mitchell was devastated. However, through it all, our Sue Ryder Manorlands Hospice was there to provide support and now, one year on, Miki is supporting them – bringing with her 100 entrants to Manorlands’ annual Bronte Sportive cycling event.    

Nilesh with his mother as a baby

“Grief is universal; it crosses all boundaries and is something that we will all share.”

Online Community member Nilesh Makwana recounts how losing his parents, Subhadra and Ramniklal, prompted him to join our online bereavement forum in 2017.