Suffolk’s Dementia Together service led by Sue Ryder has seen a big increase in the number of calls to its helpline and has launched virtual meet-ups to support people living with dementia and their families during this difficult time.
The support group held a Christmas party on Thursday 12th December, with lots of carol singing and a chance to talk to other carers, at Sue Ryder St John’s Hospice.
Today, on Carers Rights Day, our Human Rights Lead Jacqui Graves highlights the rights of carers looking after people with life-limiting conditions and how they can ensure their rights are respected and protected.
“My husband’s wish was to die at home. He wanted to be surrounded by his own things with his family and friends around him.”
Penny Jarvis’s husband Colin died in 2009, five years after he was first diagnosed with a rare degenerative brain disease. Penny was Colin’s main carer and he was able to die in his own home according to his wishes. Ten years on and Penny, a Nursing Assistant, now works as part of the Hospice at Home team at Sue Ryder South Oxfordshire Palliative Care Hub.
Gloucestershire family take on 100-mile RideLondon-Surrey challenge for Sue Ryder Leckhampton Court Hospice
A family are challenging themselves to complete a 100-mile cycle to raise money for their local Sue Ryder Leckhampton Hospice, who supported their wife and mother when she died.
“Mum and I didn’t know what Dad would have wanted for his funeral. Because of that, we talked about what Mum’s final wishes would be.”
Kirsty Hodgson’s mum Kathleen spent the last two weeks of her life at Sue Ryder Wheatfields Hospice in Leeds in August 2016. Here, she recounts their story and explains why they made plans were put in place for the end of her mum's life.
“Not all of us will have the opportunity to plan our death and I feel that, if you can, you should.”
Valerie Bevan, 69, was diagnosed with multiple sclerosis 26 years ago and now only has movement in her head and neck. She is a day patient at Sue Ryder Manorlands Hospice where her daughter Harriet works as a Community Fundraiser. This is her story in her own words.
Whilst Brits know how they would spend their last days on earth, few are preparing for them, our new survey has revealed. As a result of this, we are calling on the nation to start talking about death.
Sue Ryder hosted a free conference on human rights in end of life care on Thursday 27th June 2019 in London, exploring further how applying a human rights approach to practice can help deliver person-centred and compassionate care.
Staff at Sue Ryder Thorpe Hall Hospice have been trialling an innovative Wellbeing Café to support patients to live as fully and actively as possible with great success.