“My husband’s wish was to die at home. He wanted to be surrounded by his own things with his family and friends around him.”
Penny Jarvis’s husband Colin died in 2009, five years after he was first diagnosed with a rare degenerative brain disease. Penny was Colin’s main carer and he was able to die in his own home according to his wishes. Ten years on and Penny, a Nursing Assistant, now works as part of the Hospice at Home team at Sue Ryder South Oxfordshire Palliative Care Hub.
Whilst Brits know how they would spend their last days on earth, few are preparing for them, our new survey has revealed. As a result of this, we are calling on the nation to start talking about death.
Yesterday’s Daily Telegraph reported that, according to NHS nurses, too many patients are being subjected to Do Not Attempt Resuscitation (DNAR) orders without families being told. Our Human Rights Lead Jacqui Graves provides the important clinical context behind the headlines.
People with neurological conditions in England are being let down by the very health and care systems that are supposed to be supporting them – that’s the finding of our new report Time to get it right, writes our Policy and Public Affairs Manager (England) Duncan Lugton.
Over 15,000 people with neurological conditions are being placed in nursing homes for the elderly, our shocking report reveals
Our new report, 'Time to get it right' published today, gives a comprehensive picture on how people with neurological conditions such as motor neurone disease, Parkinson’s disease, multiple sclerosis, Huntington’s disease and acquired brain injury are being let down by health and social services in England.
It’s a tough question that Sue Ryder are trying to tackle. Our latest marketing campaign has been launched to encourage people to start the conversation about death, and to cement our position as experts in this area.
This Monday 10th December 2018 is the 70th anniversary of the adoption of the Universal Declaration of Human Rights. Lead Nurse in Palliative and End of Life Care Philip Ball reflects on how far we’ve come but warns that we mustn’t become complacent.
"Week four of my race to complete a six-week half marathon training programme has come and gone," writes our National Events Fundraiser Henry. "Now I’m staring down the barrel of the last two weeks of preparations for the race." Find out how prepared he's feeling in the latest instalment in our blog series.
National Events Fundraiser Henry is three weeks into his Royal Parks Half Marathon training routine - and it's dawning on him that he doesn't have much time left to get race day-ready!
The Chantry, one of four Sue Ryder centres dedicated to providing care for people with neurological conditions, is holding an open day on Thursday 20th September 2018.