“Mum and I didn’t know what Dad would have wanted for his funeral. Because of that, we talked about what Mum’s final wishes would be.”
Kirsty Hodgson’s mum Kathleen spent the last two weeks of her life at Sue Ryder Wheatfields Hospice in Leeds in August 2016. Here, she recounts their story and explains why they made plans were put in place for the end of her mum's life.
“Not all of us will have the opportunity to plan our death and I feel that, if you can, you should.”
Valerie Bevan, 69, was diagnosed with multiple sclerosis 26 years ago and now only has movement in her head and neck. She is a day patient at Sue Ryder Manorlands Hospice where her daughter Harriet works as a Community Fundraiser. This is her story in her own words.
People with neurological conditions are facing long waiting times, limited access to specialists and say they are being discriminated against, a new survey by The Neurological Alliance has found.
When she lost her husband Chris to cancer last October, Miki Mitchell was devastated. However, through it all, our Sue Ryder Manorlands Hospice was there to provide support and now, one year on, Miki is supporting them – bringing with her 100 entrants to Manorlands’ annual Bronte Sportive cycling event.
People with neurological conditions in England are being let down by the very health and care systems that are supposed to be supporting them – that’s the finding of our new report Time to get it right, writes our Policy and Public Affairs Manager (England) Duncan Lugton.
Over 15,000 people with neurological conditions are being placed in nursing homes for the elderly, our shocking report reveals
Our report, 'Time to get it right', published today, gives a detailed picture on how people with neurological conditions such as motor neurone disease, Parkinson’s disease, multiple sclerosis, Huntington’s disease and acquired brain injury are being let down by health and social services in England.
“Throughout the last few months of my beautiful mum-in-law Marian’s life, Sue Ryder Nurses were on call 24/7,” writes Angie Lund. “They ensured Marian's dignity remained intact, kept her totally pain free, gave us ongoing advice, and took her wishes about her care into consideration throughout. It is for this reason, in Marian’s memory, that I want to give something back by running the London Marathon.”
At the end of last year, the Scottish Government produced the country’s first national action plan on neurological conditions. But, now it’s been created, next comes the most crucial step: its delivery. Sue Ryder's Policy and Public Affairs Manager for Scotland Elinor Jayne, who helped shape the plan, reports.
The government has confirmed today that the Green Paper on adult social care has been further delayed and won't be published until next year.
Following a successful pilot with residents at Sue Ryder Dee View Court, we are now rolling out the use of virtual reality as a form of mood-boosting therapy across all of our neurological care centres.