'Even if it's just to one person, or just one word, say something.' Jess Bacon's struggles with grief and the importance of opening up to others
At sixteen, Jess Bacon tragically lost her Dad. Here, she describes her struggles with depression and communicating about her loss, the silence of those around her who were scared to say the wrong thing and the liberating power of reaching out to people for support; 'Even if it's just to one person, or just one word, say something.'
Today (20th August 2019), Boris Johnson has secured a £25 million cash boost for hospice services. The Prime Minister said he's hopes the money 'alleviates the everyday pressure' faced by the sector.
Whilst Brits know how they would spend their last days on earth, few are preparing for them, our new survey has revealed. As a result of this, we are calling on the nation to start talking about death.
People with neurological conditions are facing long waiting times, limited access to specialists and say they are being discriminated against, a new survey by The Neurological Alliance has found.
Yesterday’s Daily Telegraph reported that, according to NHS nurses, too many patients are being subjected to Do Not Attempt Resuscitation (DNAR) orders without families being told. Our Human Rights Lead Jacqui Graves provides the important clinical context behind the headlines.
Sue Ryder is calling on the Government to better support those who have been bereaved as many are missing out on vital benefits and face falling into debt to pay for basic funeral packages.
At the end of last year, the Scottish Government produced the country’s first national action plan on neurological conditions. But, now it’s been created, next comes the most crucial step: its delivery. Sue Ryder's Policy and Public Affairs Manager for Scotland Elinor Jayne, who helped shape the plan, reports.
The government has confirmed today that the Green Paper on adult social care has been further delayed and won't be published until next year.
This Monday 10th December 2018 is the 70th anniversary of the adoption of the Universal Declaration of Human Rights. Lead Nurse in Palliative and End of Life Care Philip Ball reflects on how far we’ve come but warns that we mustn’t become complacent.
If you or a loved one have experience of conditions such as multiple sclerosis, Huntington's disease, Parkinson's disease, brain injury or stroke, please complete the Neurological Alliance Patient Experience Survey.