We understand that visiting is loved ones is crucial to the health and wellbeing of all our patients and clients, and the safety of the people in our care remains of paramount importance.
Whilst Brits know how they would spend their last days on earth, few are preparing for them, our new survey has revealed. As a result of this, we are calling on the nation to start talking about death.
Sue Ryder hosted a free conference on human rights in end of life care on Thursday 27th June 2019 in London, exploring further how applying a human rights approach to practice can help deliver person-centred and compassionate care.
People with neurological conditions are facing long waiting times, limited access to specialists and say they are being discriminated against, a new survey by The Neurological Alliance has found.
Yesterday’s Daily Telegraph reported that, according to NHS nurses, too many patients are being subjected to Do Not Attempt Resuscitation (DNAR) orders without families being told. Our Human Rights Lead Jacqui Graves provides the important clinical context behind the headlines.
People with neurological conditions in England are being let down by the very health and care systems that are supposed to be supporting them – that’s the finding of our new report Time to get it right, writes our Policy and Public Affairs Manager (England) Duncan Lugton.
Over 15,000 people with neurological conditions are being placed in nursing homes for the elderly, our shocking report reveals
Our report, 'Time to get it right', published today, gives a detailed picture on how people with neurological conditions such as motor neurone disease, Parkinson’s disease, multiple sclerosis, Huntington’s disease and acquired brain injury are being let down by health and social services in England.
After seeing the difference that his wife makes every day as a palliative care nurse, Mike decided to cycle 400 kilometres from Vietnam to Cambodia to raise money for our Sue Ryder Leckhampton Court Hospice. Here he talks about his trip of a lifetime.
This Monday 10th December 2018 is the 70th anniversary of the adoption of the Universal Declaration of Human Rights. Lead Nurse in Palliative and End of Life Care Philip Ball reflects on how far we’ve come but warns that we mustn’t become complacent.
If you or a loved one have experience of conditions such as multiple sclerosis, Huntington's disease, Parkinson's disease, brain injury or stroke, please complete the Neurological Alliance Patient Experience Survey.