Visiting a Sue Ryder hospice or neurological centre remains significantly limited and continues to be carefully managed to ensure the safety of the people in our care, our staff and visitors.
Today, on Carers Rights Day, our Human Rights Lead Jacqui Graves highlights the rights of carers looking after people with life-limiting conditions and how they can ensure their rights are respected and protected.
Whilst Brits know how they would spend their last days on earth, few are preparing for them, our new survey has revealed. As a result of this, we are calling on the nation to start talking about death.
People with neurological conditions are facing long waiting times, limited access to specialists and say they are being discriminated against, a new survey by The Neurological Alliance has found.
Yesterday’s Daily Telegraph reported that, according to NHS nurses, too many patients are being subjected to Do Not Attempt Resuscitation (DNAR) orders without families being told. Our Human Rights Lead Jacqui Graves provides the important clinical context behind the headlines.
People with neurological conditions in England are being let down by the very health and care systems that are supposed to be supporting them – that’s the finding of our new report Time to get it right, writes our Policy and Public Affairs Manager (England) Duncan Lugton.
Over 15,000 people with neurological conditions are being placed in nursing homes for the elderly, our shocking report reveals
Our report, 'Time to get it right', published today, gives a detailed picture on how people with neurological conditions such as motor neurone disease, Parkinson’s disease, multiple sclerosis, Huntington’s disease and acquired brain injury are being let down by health and social services in England.
If you or a loved one have experience of conditions such as multiple sclerosis, Huntington's disease, Parkinson's disease, brain injury or stroke, please complete the Neurological Alliance Patient Experience Survey.
"Week four of my race to complete a six-week half marathon training programme has come and gone," writes our National Events Fundraiser Henry. "Now I’m staring down the barrel of the last two weeks of preparations for the race." Find out how prepared he's feeling in the latest instalment in our blog series.
National Events Fundraiser Henry is three weeks into his Royal Parks Half Marathon training routine - and it's dawning on him that he doesn't have much time left to get race day-ready!