“My husband’s wish was to die at home. He wanted to be surrounded by his own things with his family and friends around him.”
Penny Jarvis’s husband Colin died in 2009, five years after he was first diagnosed with a rare degenerative brain disease. Penny was Colin’s main carer and he was able to die in his own home according to his wishes. Ten years on and Penny, a Nursing Assistant, now works as part of the Hospice at Home team at Sue Ryder South Oxfordshire Palliative Care Hub.
People with neurological conditions in England are being let down by the very health and care systems that are supposed to be supporting them – that’s the finding of our new report Time to get it right, writes our Policy and Public Affairs Manager (England) Duncan Lugton.
It’s a tough question that Sue Ryder are trying to tackle. Our latest marketing campaign has been launched to encourage people to start the conversation about death, and to cement our position as experts in this area.
The Chantry, one of four Sue Ryder centres dedicated to providing care for people with neurological conditions, is holding an open day on Thursday 20th September 2018.
Sue Ryder St John’s Hospice in Moggerhanger in Bedfordshire is preparing to open its doors on Tuesday 18th September for a recruitment open day. They are keen to meet potential Nurses, Nursing Assistants, catering, domestic and maintenance staff.
Self-employed hairdresser Cristina Tant spends five hours a week volunteering at our Thorpe Hall Hospice. She is part of the centre's specially trained Get Creative team, who offer hospice patients the chance to get involved in arts and crafts, use the hospice’s iPads to complete puzzles or crosswords, visit the shop and take part in other activities.