Meet Sue Ryder St John’s Family Support Team, a multi-disciplinary team who support people from diagnosis onwards, during life-limiting conditions, and we also offer bereavement support after a loved one has died.
People with neurological conditions are facing long waiting times, limited access to specialists and say they are being discriminated against, a new survey by The Neurological Alliance has found.
“At the hospice, I was able to become Mum’s daughter again instead of her carer – and grant her final wish.”
Emma Rayner's mum Clarissa spent her last two weeks at our hospice in Peterborough. In this blog post and moving video montage, Emma shares her family’s story.
"What do you say to someone facing a life-changing diagnosis? I have no idea - but I'm a good listener and that helps."
Penny Fisher has volunteered as a befriender and bereavement supporter at Sue Ryder Thorpe Hall Hospice since 2008, following the death of her husband. Here, she tells us why she gives her time.
People with neurological conditions in England are being let down by the very health and care systems that are supposed to be supporting them – that’s the finding of our new report Time to get it right, writes our Policy and Public Affairs Manager (England) Duncan Lugton.
Over 15,000 people with neurological conditions are being placed in nursing homes for the elderly, our shocking report reveals
Our report, 'Time to get it right', published today, gives a detailed picture on how people with neurological conditions such as motor neurone disease, Parkinson’s disease, multiple sclerosis, Huntington’s disease and acquired brain injury are being let down by health and social services in England.
We were delighted to welcome our regular blogger, Richard Littledale, as keynote speaker at the Sue Ryder annual lecture last week. The event was hosted by Rachel Reeves MP at the House of Commons and discussed the topic of bereavement.
“When I found out Dad had cancer, I worried about my graduation – and about my future beyond it. I thought of every single day ahead when he wouldn’t be there,” writes Jess Bacon, whose dad died at Thorpe Hall Hospice five years ago. She recalls all the (dreaded) milestones that have come and gone since then.
What happens when someone you love has died, leaving their belongings behind? How do you decide what to keep and – at what is such a painful time – work out which items ‘spark joy’? After watching the Tidying Up with Marie Kondo episode ‘Sparking Joy After A Loss’, Julia Cook reflects on losing her parents-in-law and how she navigated the difficult process of sorting through their effects.
At the end of last year, the Scottish Government produced the country’s first national action plan on neurological conditions. But, now it’s been created, next comes the most crucial step: its delivery. Sue Ryder's Policy and Public Affairs Manager for Scotland Elinor Jayne, who helped shape the plan, reports.