People with neurological conditions in England are being let down by the very health and care systems that are supposed to be supporting them – that’s the finding of our new report Time to get it right, writes our Policy and Public Affairs Manager (England) Duncan Lugton.
Over 15,000 people with neurological conditions are being placed in nursing homes for the elderly, our shocking report reveals
Our new report, 'Time to get it right' published today, gives a comprehensive picture on how people with neurological conditions such as motor neurone disease, Parkinson’s disease, multiple sclerosis, Huntington’s disease and acquired brain injury are being let down by health and social services in England.
We were delighted to welcome our regular blogger, Richard Littledale, as keynote speaker at the Sue Ryder annual lecture last week. The event was hosted by Rachel Reeves MP at the House of Commons and discussed the topic of bereavement.
“Throughout the last few months of my beautiful mum-in-law Marian’s life, Sue Ryder Nurses were on call 24/7,” writes Angie Lund. “They ensured Marian's dignity remained intact, kept her totally pain free, gave us ongoing advice, and took her wishes about her care into consideration throughout. It is for this reason, in Marian’s memory, that I want to give something back by running the London Marathon.”
"It's amazing how you can attach feelings to a song, which will forever draw an emotional response. There are a few songs that make me think of my Mum, and for a number of reasons," writes blogger Ryan Judson, whose mum was cared for at our Sue Ryder Manorlands Hospice in West Yorkshire. "Tonight, the most important of all those songs came on, and it hurt more than ever."
“Manorlands staff move heaven and earth to make sure patients and their families feel safe, cared for and at home.”
Our Sue Ryder Manorlands Hospice provided Michelle Vann’s parents, Janis and Mark Lawson, with outreach nursing and respite care before they ended their lives at the hospice. This is their family’s story in Michelle’s own words.
The government has confirmed today that the Green Paper on adult social care has been further delayed and won't be published until next year.
“Initially, I thought no one could help me as no one could change what happened, but I’ve discovered that that isn't really the point of counselling at all.” Blogger Jess reflects on how, five years after her Dad’s death, counselling and therapy have helped her come to terms with her loss.
Having recently moved to the Derby area, Elizabeth Meakin found that volunteering at her local Sue Ryder charity shop was the perfect way not only to meet people and boost her confidence but change her career.
A shopper at our charity shop in Bingley, Bradford, has bought a winning £10,000 Lottery Super Draw ticket that’s yet to be claimed. So the search is on for the lucky winner – could it be you?