On 5 October, Sue Ryder will be presenting at the Royal College of Nursing event, ‘What use are human rights in end of life care?’ to highlight the areas for development and discuss the changes that need to be made in order to embed a human rights approach to end of life care.
Today is Human Rights Day, a day that celebrates the adoption of the Universal Declaration of Human Rights in 1948. In her latest blog, our Human Rights Lead, Jacqui Graves, explains how we are asking party leaders to commit to protecting human rights in the UK.
When someone is diagnosed with a terminal illness, how do you break the news to them and their family? Dr Paul Perkins, Chief Medical Director, explains in his blog that there are no right or wrong answers, and it's the human connection which counts.
Today, on Carers Rights Day, our Human Rights Lead Jacqui Graves highlights the rights of carers looking after people with life-limiting conditions and how they can ensure their rights are respected and protected.
NICE guideline for end of life care: a major step change or well-intentioned but undeliverable at current levels of funding?
Today, Wednesday 16 October 2019, the National Institute for Health and Care Excellence (NICE) launch their new guideline for organising and delivering end of life care services for adults. Sue Ryder’s Policy and Public Affairs Officer Niamh Buckingham reports on the difference it could make to the people we care for
“When living with a life-limiting condition, there is still life to be lived. And here at Sue Ryder St John’s Hospice our multi-disciplinary teams do all we can to make sure that life is fulfilling.” These are the words of Funmi Shitta-Bey, Physiotherapist and Day Therapy Lead at Sue Ryder St John’s Hospice in Bedfordshire, who tells us more about her role.
“My husband’s wish was to die at home. He wanted to be surrounded by his own things with his family and friends around him.”
Penny Jarvis’s husband Colin died in 2009, five years after he was first diagnosed with a rare degenerative brain disease. Penny was Colin’s main carer and he was able to die in his own home according to his wishes. Ten years on and Penny, a Nursing Assistant, now works as part of the Hospice at Home team at Sue Ryder South Oxfordshire Palliative Care Hub.
Gloucestershire family take on 100-mile RideLondon-Surrey challenge for Sue Ryder Leckhampton Court Hospice
A family are challenging themselves to complete a 100-mile cycle to raise money for their local Sue Ryder Leckhampton Hospice, who supported their wife and mother when she died.
“Mum and I didn’t know what Dad would have wanted for his funeral. Because of that, we talked about what Mum’s final wishes would be.”
Kirsty Hodgson’s mum Kathleen spent the last two weeks of her life at Sue Ryder Wheatfields Hospice in Leeds in August 2016. Here, she recounts their story and explains why they made plans were put in place for the end of her mum's life.
“Not all of us will have the opportunity to plan our death and I feel that, if you can, you should.”
Valerie Bevan, 69, was diagnosed with multiple sclerosis 26 years ago and now only has movement in her head and neck. She is a day patient at Sue Ryder Manorlands Hospice where her daughter Harriet works as a Community Fundraiser. This is her story in her own words.