“My husband’s wish was to die at home. He wanted to be surrounded by his own things with his family and friends around him.”
Penny Jarvis’s husband Colin died in 2009, five years after he was first diagnosed with a rare degenerative brain disease. Penny was Colin’s main carer and he was able to die in his own home according to his wishes. Ten years on and Penny, a Nursing Assistant, now works as part of the Hospice at Home team at Sue Ryder South Oxfordshire Palliative Care Hub.
39-year-old Helen Daniels is taking part in the Bedford Running Festival in September. She’ll be running in memory of her mum and to raise funds for the hospice that cared for her, Sue Ryder St John’s in Moggerhanger.
The Sue Ryder South Oxfordshire Palliative Care Hub launched on Monday 9th April 2018 and, since then, Sue Ryder Nurses have provided palliative care for 310 local patients in their homes throughout the region.
People with neurological conditions in England are being let down by the very health and care systems that are supposed to be supporting them – that’s the finding of our new report Time to get it right, writes our Policy and Public Affairs Manager (England) Duncan Lugton.
Over 15,000 people with neurological conditions are being placed in nursing homes for the elderly, our shocking report reveals
Our new report, 'Time to get it right' published today, gives a comprehensive picture on how people with neurological conditions such as motor neurone disease, Parkinson’s disease, multiple sclerosis, Huntington’s disease and acquired brain injury are being let down by health and social services in England.
It’s a tough question that Sue Ryder are trying to tackle. Our latest marketing campaign has been launched to encourage people to start the conversation about death, and to cement our position as experts in this area.