People with neurological conditions in England are being let down by the very health and care systems that are supposed to be supporting them – that’s the finding of our new report Time to get it right, writes our Policy and Public Affairs Manager (England) Duncan Lugton.
Over 15,000 people with neurological conditions are being placed in nursing homes for the elderly, our shocking report reveals
Our new report, 'Time to get it right' published today, gives a comprehensive picture on how people with neurological conditions such as motor neurone disease, Parkinson’s disease, multiple sclerosis, Huntington’s disease and acquired brain injury are being let down by health and social services in England.
After Amy Goodacre’s mum Tracey died at Sue Ryder Thorpe Hall Hospice three years ago, she started fundraising so other families could experience the same expert care as hers did. In this blog post, Amy talks about her experience at the hospice and her latest venture – helping to organise our 2019 Walk to Remember event.
It’s a tough question that Sue Ryder are trying to tackle. Our latest marketing campaign has been launched to encourage people to start the conversation about death, and to cement our position as experts in this area.
Containing analysis carried out by independent experts, the report shows that proactive care early in someone’s life, such as self-management support and advice or respite care, can save in the region of 30–50% annually when compared to reactive care, i.e. when someone’s health requires urgent care.
Self-employed hairdresser Cristina Tant spends five hours a week volunteering at our Thorpe Hall Hospice. She is part of the centre's specially trained Get Creative team, who offer hospice patients the chance to get involved in arts and crafts, use the hospice’s iPads to complete puzzles or crosswords, visit the shop and take part in other activities.