Whilst Brits know how they would spend their last days on earth, few are preparing for them, our new survey has revealed. As a result of this, we are calling on the nation to start talking about death.
People with neurological conditions are facing long waiting times, limited access to specialists and say they are being discriminated against, a new survey by The Neurological Alliance has found.
“It is so reassuring to know that Dad is being properly cared for by people who understand him and his needs.”
Tony has Huntington’s disease and has lived at our Sue Ryder Cuerden Hall Neurological Care Centre since 2014. Here, his daughter describes how he came to be at Cuerden Hall and the positive impact it has had on his and his family’s lives.
Earlier this month, we held our first engagement event ahead of the move from Cuerden Hall to our new Neurological Care Centre Lancashire.
Yesterday’s Daily Telegraph reported that, according to NHS nurses, too many patients are being subjected to Do Not Attempt Resuscitation (DNAR) orders without families being told. Our Human Rights Lead Jacqui Graves provides the important clinical context behind the headlines.
People with neurological conditions in England are being let down by the very health and care systems that are supposed to be supporting them – that’s the finding of our new report Time to get it right, writes our Policy and Public Affairs Manager (England) Duncan Lugton.
Over 15,000 people with neurological conditions are being placed in nursing homes for the elderly, our shocking report reveals
Our new report, 'Time to get it right' published today, gives a comprehensive picture on how people with neurological conditions such as motor neurone disease, Parkinson’s disease, multiple sclerosis, Huntington’s disease and acquired brain injury are being let down by health and social services in England.
This Monday 10th December 2018 is the 70th anniversary of the adoption of the Universal Declaration of Human Rights. Lead Nurse in Palliative and End of Life Care Philip Ball reflects on how far we’ve come but warns that we mustn’t become complacent.
We have today announced plans to build a new state-of-the-art Sue Ryder neurological care centre at the D’Urton Manor development in Eastway, Preston, in Lancashire.
If you or a loved one have experience of conditions such as multiple sclerosis, Huntington's disease, Parkinson's disease, brain injury or stroke, please complete the Neurological Alliance Patient Experience Survey.
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