“My husband’s wish was to die at home. He wanted to be surrounded by his own things with his family and friends around him.”
Penny Jarvis’s husband Colin died in 2009, five years after he was first diagnosed with a rare degenerative brain disease. Penny was Colin’s main carer and he was able to die in his own home according to his wishes. Ten years on and Penny, a Nursing Assistant, now works as part of the Hospice at Home team at Sue Ryder South Oxfordshire Palliative Care Hub.
Whilst Brits know how they would spend their last days on earth, few are preparing for them, our new survey has revealed. As a result of this, we are calling on the nation to start talking about death.
Yesterday’s Daily Telegraph reported that, according to NHS nurses, too many patients are being subjected to Do Not Attempt Resuscitation (DNAR) orders without families being told. Our Human Rights Lead Jacqui Graves provides the important clinical context behind the headlines.
People with neurological conditions in England are being let down by the very health and care systems that are supposed to be supporting them – that’s the finding of our new report Time to get it right, writes our Policy and Public Affairs Manager (England) Duncan Lugton.
It’s a tough question that Sue Ryder are trying to tackle. Our latest marketing campaign has been launched to encourage people to start the conversation about death, and to cement our position as experts in this area.
This Monday 10th December 2018 is the 70th anniversary of the adoption of the Universal Declaration of Human Rights. Lead Nurse in Palliative and End of Life Care Philip Ball reflects on how far we’ve come but warns that we mustn’t become complacent.
Following the loss of his mother at St John’s Hospice in February 2016, Chris Hall discovered volunteering and has never looked back. Here, he recalls his first forays into volunteering, how it led to a paid job and what it was like to conquer his latest challenge for Sue Ryder: cycling to all seven hospices across the UK in just five days.