“My husband’s wish was to die at home. He wanted to be surrounded by his own things with his family and friends around him.”
Penny Jarvis’s husband Colin died in 2009, five years after he was first diagnosed with a rare degenerative brain disease. Penny was Colin’s main carer and he was able to die in his own home according to his wishes. Ten years on and Penny, a Nursing Assistant, now works as part of the Hospice at Home team at Sue Ryder South Oxfordshire Palliative Care Hub.
39-year-old Helen Daniels is taking part in the Bedford Running Festival in September. She’ll be running in memory of her mum and to raise funds for the hospice that cared for her, Sue Ryder St John’s in Moggerhanger.
People with neurological conditions are facing long waiting times, limited access to specialists and say they are being discriminated against, a new survey by The Neurological Alliance has found.
Pets can be a great support during illness and beyond – as volunteer Barry discovered when, following his wife Sarita’s death, he signed up their puppy Bella to become a certified Pets as Therapy dog.
The Sue Ryder South Oxfordshire Palliative Care Hub launched on Monday 9th April 2018 and, since then, Sue Ryder Nurses have provided palliative care for 310 local patients in their homes throughout the region.
On Sunday, Joanna Cook will run the London Marathon to celebrate her mother’s life and to say thank you to Sue Ryder Thorpe Hall Hospice. This is her story.
People with neurological conditions in England are being let down by the very health and care systems that are supposed to be supporting them – that’s the finding of our new report Time to get it right, writes our Policy and Public Affairs Manager (England) Duncan Lugton.
Over 15,000 people with neurological conditions are being placed in nursing homes for the elderly, our shocking report reveals
Our new report, 'Time to get it right' published today, gives a comprehensive picture on how people with neurological conditions such as motor neurone disease, Parkinson’s disease, multiple sclerosis, Huntington’s disease and acquired brain injury are being let down by health and social services in England.
We were delighted to welcome our regular blogger, Richard Littledale, as keynote speaker at the Sue Ryder annual lecture last week. The event was hosted by Rachel Reeves MP at the House of Commons and discussed the topic of bereavement.
“When I found out Dad had cancer, I worried about my graduation – and about my future beyond it. I thought of every single day ahead when he wouldn’t be there,” writes Jess Bacon, whose dad died at our Thorpe Hall Hospice five years ago. Here, she recalls all the (dreaded) milestones that have come and gone since then.