This page contains all our recent reports, formal submissions to consultations by government and briefings for MPs, MSPs and Peers.
We work with our service users to make the case for better palliative, neurological and bereavement support. This means we gather views, carry out research and have a good base of evidence to support our positions.
The Sue Ryder ethos of high quality, person-centred care is reflected in all of our work, and we respond to government consultations and brief politicians on how this should be the case wherever people live, and whoever provides the care and support.
We are always keen to speak to people about their experiences of palliative, neurological and bereavement support so please do get in touch if you have anything to share with us that may help us make the case to the government.
In May 2020, we submitted evidence to the Health and Social Care Committee inquiry on delivering care services in light of the pandemic, highlighting the importance of palliative, neurological and bereavement support in the wake of the coronavirus crisis.
In April 2020, we submitted evidence to the Digital, Culture, Media and Sport Committee regarding the impact of COVID-19 on the charity sector, calling for access to emergency funding for the hospice sector.
In early 2020, we briefed MPs about the benefits of neurorehabilitation ahead of a parliamentary debate on Acquired Brain Injury. We highlighted how neurorehabilitation optimises recovery, improves quality of life and is extremely cost-effective.
To mark the end of Dying Matters Awareness Week 2019, we made a submission to the Work and Pensions Select Committee Inquiry, looking into Bereavement Support Payment.
In March 2019, we published a new research report shining a spotlight on the UK’s experiences with death and bereavement. It revealed that, although 7 out of 10 adults have suffered at least one bereavement in the last five years, the ‘D word’ remains one of our society’s final taboos, with a veil of silence around the subject.
In late 2018, Sue Ryder commissioned the University of Birmingham to look at the last ten years of research on bereavement in the UK and produce a report summarising the state of the evidence.
In September 2018, we launched an analysis that showed investing in proactive care for people with neurological conditions saves the public purse money.
Every individual has the right to access appropriate palliative and end of life care and support, regardless of circumstances, age, status or geographical location. The Scottish Government has committed that everyone who needs it should have access to palliative care in Scotland by 2021. This is a joint submission across various organisations which focuses specifically on meeting the social care needs of people affected by terminal illness in Scotland.
We published a joint report with Hospice UK that shows bereaved people in Scotland are not accessing the support they need. As a result, we are calling on the Scottish Govenment, NHS and integration authorities to take forward our recommendations.
In the run-up to the 2016 Scottish Parliament elections, we revealed that care and support for people with neurological conditions were inadequate and patchy, with some people being inappropriately placed in older people’s care homes.
In 2017, we wanted to see what progress had been made in improving neurological care across Scotland.
We also revealed that many people at the end of life, and their families, have no meaningful care and support overnight and at weekends.
We believe that everyone with a neurological condition and with a life-limiting condition should have a right to high quality rehabilitation services that meet their needs. That's why we've teamed up with the Chartered Society of Physiotherapy, the Royal College of Occupational Therapy and a range of other charities and organisations to call on our politicians to ensure everyone has a 'right to rehab'.
In August 2018, Sue Ryder commissioned a Freedom of Information (FOI) request to all Local Authorities in England asking about their services for people with neurological conditions. This report sets these findings in the context of other recent research and an earlier FOI conducted by Sue Ryder which was targeted at CCGs. The report makes recommendations to policy makers on how to improve care and support for people with neurological conditions.
In 2017, we teamed up with the Neurological Alliance to examine the health system in England from the perspective of people with neurological conditions. We found that the system was consistently failing to prioritise their needs, and consistently failing to deliver.