Our policy and research work

We present evidence to key stakeholders and health and care commissioners to make the case for improved palliative, neurological and bereavement care and support. We carry out research projects and gather views from our service users to develop our policy positions in order to shape policy at a national and local level.

Workshop at Sue Ryder The Chantry

Palliative Care

‘What Matters to Me’: Evaluation of a Human Rights Approach to End of Life Care Download

In order to embed a human rights approach to end of life care, we launched a groundbreaking training programme for healthcare professionals. Our evaluation found that the training has delivered outstanding results, with a very high proportion of people rating their knowledge of human rights and confidence to use it in the workplace far higher since attending the course.

Dying Still Doesn't Work 9-5: What has changed since 2014? Download

This report has been produced as part of Sue Ryder’s ongoing ‘Dying Doesn’t Work 9 to 5’ campaign, which has fought to ensure that everyone at the end of life has access to these services. It aims to shed light on the provision of these services across England and to see how things have changed since the campaign was launched, drawing on new data.

Neurological care

Time to Get it Right: The provision of health and social care services for people with neurological conditions in England Download

In 2018, Sue Ryder commissioned a Freedom of Information (FOI) request to all Local Authorities in England asking about their services for people with neurological conditions. This report makes recommendations to policymakers on how to improve care and support for people with neurological conditions.

The Case for Proactive Neurological Care Download

An analysis which shows that investing in proactive care pathways for people with neurological conditions saves the public purse money in the long-term.

Bereavement support

Life After Death: Supporting Carers After Bereavement (Scotland) Download

For many when their caring role ends so does the vital support they receive from benefits and tax credits, peer support, and even their identity as a carer, as well as their purpose. This report with Reform Scotland and Marie Curie offers a set of clear and pragmatic policy proposals for the Scottish Government.

A Better Grief Download

A research report shining a spotlight on the UK’s experiences with death and bereavement. It revealed that, although 7 out of 10 adults have suffered at least one bereavement in the last five years, the ‘D word’ remains one of our society’s final taboos, with a veil of silence around the subject.

We are always keen to speak to people about their experiences of palliative, neurological and bereavement support so please do get in touch if you have anything to share with us that may help us in our influencing work.