Our work in England and Scotland

We aim to influence government in Scotland and England so that they take action to improve palliative, neurological and bereavement care and support.


In England

Our public affairs work in England ranges across a number of different topics that are important for people with neurological conditions and those at the end of life.

We have been involved in raising the profile of end of life care (which contributed to the Government publishing the first ever national commitment on end of life care), making the case for neurological conditions to be given greater priority in the health system and sharing our expertise about how NHS continuing healthcare is working ‘on the ground’. We also act as a key member of a number of alliances such as the Neurological Alliance, Continuing Healthcare Alliance and the End of Life Care Coalition.

Duncan Lugton is our Policy and Public Affairs Manager in England.

Key activities over the last year or so include:


Since starting public affairs work in Scotland in 2015, we have campaigned on a number of issues.

Our Rewrite the Future campaign for the 2016 Scottish Parliament elections led to the current review of Scotland’s standards for neurological care and ultimately to the Scottish Government committing to the first-ever National Action Plan on Neurological Conditions – this is due to be published for consultation in late 2018. We’ve also been making the case for out-of-hours palliative care and support and for better access to bereavement support.

More information can be found out about this in the campaigns and reports pages.

Elinor Jayne is our Policy and Public Affairs Manager in Scotland.

Our public affairs work in Scotland is carried out in a number of ways – through campaigns, giving evidence to the Scottish Parliament, prompting debates in the Parliament, meeting with MSPs and liaising with Scottish Government officials.

Key activities over the last year or so include: