Briefings and submissions

This page contains all our recent formal submissions to consultations by government and briefings for MPs, MSPs and Peers.


We work with our service users to make the case for better palliative, neurological and bereavement support. This means we gather views, carry out research and have a good base of evidence to support our positions.

The Sue Ryder ethos of high quality, person-centred care is reflected in all of our work, and we respond to government consultations and brief politicians on how this should be the case wherever people live, and whoever provides the care and support.

We are always keen to speak to people about their experiences of palliative, neurological and bereavement support so please do get in touch if you have anything to share with us that may help us make the case to the government.

I see myself as one of the few fortunate ones as there are many MND sufferers out there who, due to the postcode lottery, have limited access to much of this care and equipment.

But this needs to change – everyone with a neurological condition should be entitled to far better care packages so that they can make the most of the life they have left."

Calum Ferguson, who has motor neurone disease and has a care package that allows him to live at home.