Parliamentary briefings

Our Parliamentary briefings

Here you'll find our most recent policy briefings. This includes briefings we have produced for MPs, MSPs and Peers in advance of debates, as well as consultation responses.



Sue Ryder welcomes this debate in the Scottish Parliament as an important step towards improving the care offered to – and therefore the lives of – people in Scotland with a neurological condition.


Many more people should be accessing palliative care as they approach the end of their lives, but don’t. As well as well documented links between social background and access – or lack of – to palliative care, there are significant problems for people with life-changing conditions that are not cancer. For instance, people we support with neurological conditions – such as multiple sclerosis, Parkinson’s disease and Huntington’s disease – generally have a significantly less predictable journey.



This briefing sets out why the Gold Line service - a model for coordinated end of life care that is currently working well across Yorkshire - is relevant in and applicable to Scotland.


Sue Ryder’s ‘Dying Doesn’t Work 9 to 5’ campaign highlighted the lack of 24/7 co-ordination and support services available. Care coordination is proven to reduce hospital admissions and produce cost-savings for the NHS which Sue Ryder’s PEPs case study shows. Care coordination is a key recommendation of the Choice Review, and the Health Select Committee report recommended its further implementation.



Sue Ryder briefing for MPs ahead of adjournment debate called by Maria Caufield MP (Lewes) on palliative care



Sue Ryder is concerned about the lack of planning of care and support services for people living with complex neurological conditions, including dementia.



We believe that charities are well-placed to deliver certain public services innovatively and efficiently. However, there are significant barriers to voluntary sector involvement in delivering health services so we are pleased that the Department of Health has agreed to undertake a Fair Playing Field Review to consider these obstacles.


Everyone should be able to choose to die in their ordinary place of residence. However, this approach needs to take into account:

  1. NHS services need to be flexible;
  2. services for people receiving care at home need to be improved; and
  3. people need to be better educated about the reality of what dying at home will mean.

Sue Ryder is concerned about the lack of strategy from local authorities to commission or stimulate the development of neurological-specific care services.


This debate gives MPs the opportunity to discuss the guidance issued by the Director of Public Prosecutions in 2010 in respect of cases of Encouraging or Assisting Suicide. It also invites the Government to consult on whether this guidance should be enshrined in statute.


The NHS can recover VAT on certain non business supplies that charities cannot. This includes: catering supplies, laundry and cleaning supplies, staff training, vehicle costs, waste disposal, maintenance and repairs.



We have produced this briefing to provide you with Sue Ryder’s perspective on this important topic. We have included information about what the government can do to ensure the right services are available at the right time for older people with care needs. We have also highlighted some examples of health, care and housing services that we provide for this group.

Good quality palliative care enables patients, their families and carers people to live well at the end of life. It gives them as much choice, control and independence as they wish and helps them to be cared for in the manner and place of their choosing. In this briefing we outline some of the key methods for achieving this and describe some real life examples of quality care before, during and after death.