Dying doesn't work 9 to 5. So, why do support services?

Without 24/7 expert support dying people and their families are left isolated, facing nights at home with nowhere to turn.

Thanks to public support our petition for dedicated pallative care gained 47,160 signatures.

Through Dying doesn't work 9 to 5 we called for terminally ill people and their carers have immediate access to dedicated 24/7 expert support from a helpline, and co-ordination when they are dying. We hope this will stop the fear, isolation and distress that many people and their families are facing.

An update on what we've been up to on Dying doesn't work 9 to 5

  • We are about to send out another Freedom of Information request to CCGs to see whether there has been any progress on delivering dedicated palliative support and co-ordination for dying people and their families 24/7.
  • We are currently working with experts and local areas who have embraced this agenda to discuss what good care co-ordination services look like and how we can encourage wider progress on this agenda at a local level.
  • The main aims of our campaign were picked up in Feb 2015 by the Independent Review of Choice in End of Life Care - "What's Important to Me" which Sue Ryder was involved in. Since publication, we have been working to ensure that the recommendations of the Choice Review which include the broad aims of Dying Doesn't work 9 to 5 are implemented. The Government and NHS England have still not responded to this important report.

How you can support us


The reality

"I went from being an office worker to a care assistant overnight. I was so overwhelmed, and I just didn’t know where to turn or what to do. Without the right support it can be a traumatic experience.”

Victoria, family carer