By Advice type
Having a sore mouth can make you feel miserable and have a major impact on your everyday life, by making it hard to eat or talk. Luckily there are lots of things you can do, such as keeping your mouth clean and moist, that can help to prevent or reduce problems.
Being in pain can make it harder to cope both physically and emotionally with everything else that is going on. Working with your healthcare team to manage your pain in the way that works best for you can make a huge difference to your quality of life.
Most people with a life-limiting conditions experience feelings of extreme tiredness, weakness or lack of energy at some point. It can be very frustrating and make it difficult to do everyday things, but there are ways of managing it.
Thinking about and planning your funeral can feel very difficult, and some people prefer not to talk about it. Letting people know about any wishes can relieve your friends and family of some of the stress of organising your funeral, and can provide reassurance to those close to you that they are celebrating your life in the way you wanted.
Registering your loved one's death is one of the first things you need to do after they have died. You can start planning their funeral beforehand, but you will not be able to actually hold it until you have registered their death. Legally, you need to do this within five days (it's eight days if you're in Scotland), and you’ll then get the documents you need for the funeral.
You know your child best and whether it feels right for them to go the funeral will depend on a range of factors - such as their age, their relationship to the person who has died, and whether they want to go. There is no right or wrong answer. But offering your child the option to go is one opportunity for them to say ‘goodbye’ to a special person.
Are you under 18 years old? Do you help to look after someone who is dying – this might be your mum or dad, grandparents, brother or sister or maybe another relative, friend or neighbour? If this sounds like you – then you are a young carer.
Even young children can pick up on how people around them are feeling and changes in routine, whether you have told them what is happening or not. These changes can feel very worrying and frightening, but there are ways that you can help them to cope.
Young people are already coping with lots of stresses in their life, such as their changing hormones and important exams - so dealing with the death of someone they love can be particularly hard. It's important to make sure that they're getting the support they need.
Only you know when the time is right and the best way to tell your child that someone they love is dying. This can be incredibly hard, but there are some approaches that can help.