By Advice type
Most people with a life-limiting conditions experience feelings of extreme tiredness, weakness or lack of energy at some point. It can be very frustrating and make it difficult to do everyday things, but there are ways of managing it.
Being in pain can make it harder to cope both physically and emotionally with everything else that is going on. Working with your healthcare team to manage your pain in the way that works best for you can make a huge difference to your quality of life.
Having a sore mouth can make you feel miserable and have a major impact on your everyday life, by making it hard to eat or talk. Luckily there are lots of things you can do, such as keeping your mouth clean and moist, that can help to prevent or reduce problems.
It is common for people who are living with a life-limiting condition to lose their appetite and to lose weight. Sometimes this may be caused by your illness, its treatment, or medication you are taking. But you may also lose your appetite if you are feeling worried or depressed.
When you are ill or have a long-term condition you are more prone to getting infections. There are some simple things that you can do to reduce the risks of getting an infection. It is important to let your health professional know if you think you have an infection.
Having problems going to the toilet can be uncomfortable and distressing, but there is no need to be embarrassed – your healthcare team are quite used to helping people with these issues. There are also some things that you can do yourself that can help to relieve some of the symptoms.
Being short of breath can make it difficult to do some of your usual day-to-day activities, such as taking a shower or cooking a meal. As well as being uncomfortable, it can also make you feel very anxious or even frightened, which can make it even harder to breathe. But there are lots of things that you and your healthcare team can do to manage it.
If you are employed, you are entitled to some bereavement leave from work when a loved one dies. However, there is no set legal amount of leave. It can help to know your rights and how the system works.
Young people are already coping with lots of stresses in their life, such as their changing hormones and important exams - so dealing with the death of someone they love can be particularly hard. It's important to make sure that they're getting the support they need.
We all find it hard to cope when someone we love dies. Helping a child to cope with the loss of someone they love can be particularly difficult when you are dealing with your own grief. But there are things that you can do to support children through this difficult time.