Advice and support

When you find out that someone you love is dying, it can be hard to know what to do next. This information will help you find your way.

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Coping as a carer

Sometimes caring can feel overwhelming, and people often tell us that they feel guilty making time for their own needs, but looking after yourself is the best way to ensure that you can be there to provide the care and support you want to for your friend or relative.

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Can I get bereavement benefit?

If you have lost a spouse, partner or civil partner, you could be entitled to financial help, known as bereavement benefits, regardless of how much your income is.

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Understanding medicines

Taking the medicines you are prescribed can help to make sure you make the most of your health and get on with your life. If there are problems with your medication, or it is not controlling your symptoms, you should tell your healthcare professional.

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Adapting your home

You might be having difficulty with some daily activities, like getting about your house or washing. If so, there may be equipment that can help or adaptations that can be made to your home.

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Going on holiday

Going on holiday is important to many people as a way to spend quality time together, see the places they’ve always wanted to see, or just to feel that life is carrying on as normal.

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Getting financial support

When someone is dying, it can put a lot of financial pressure on them and those who care for them. In the last year of life, most people are eligible to receive at least some benefits. They may also be able to access charitable grants or other forms of support.

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Managing symptoms

Each of us is different, and our experience of different health conditions is also unique to each person. This section describes some common symptoms you may experience and how you can manage them in partnership with your healthcare team.

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Managing symptoms - tiredness and lack of energy

Most people with a life-limiting conditions experience feelings of extreme tiredness, weakness or lack of energy at some point. It can be very frustrating and make it difficult to do everyday things, but there are ways of managing it.

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Managing symptoms - pain and pain control

Being in pain can make it harder to cope both physically and emotionally with everything else that is going on. Working with your healthcare team to manage your pain in the way that works best for you can make a huge difference to your quality of life.

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Managing symptoms - mouth problems

Having a sore mouth can make you feel miserable and have a major impact on your everyday life, by making it hard to eat or talk. Luckily there are lots of things you can do, such as keeping your mouth clean and moist, that can help to prevent or reduce problems.