Our reports

Find our most recent reports on issues that affect the people we provide care and support for.

Bruce Crawford MSP


In March 2019, we published a new research report shining a spotlight on the UK’s experiences with death and bereavement. It revealed that, although 7 out of 10 adults have suffered at least one bereavement in the last five years, the ‘D word’ remains one of our society’s final taboos, with a veil of silence around the subject.

In September 2018, we launched an analysis that showed investing in proactive care for people with neurological conditions saves the public purse money.


Most recently, we published a joint report with Hospice UK that shows bereaved people in Scotland are not accessing the support they need. As a result, we are calling on the Scottish Govenment, NHS and integration authorities to take forward our recommendations.

In the run-up to the 2016 Scottish Parliament elections, we revealed that care and support for people with neurological conditions were inadequate and patchy, with some people being inappropriately placed in older people’s care homes.

In 2017, we wanted to see what progress had been made in improving neurological care across Scotland.

We also revealed that many people at the end of life, and their families, have no meaningful care and support overnight and at weekends.


In August 2018, Sue Ryder commissioned a Freedom of Information (FOI) request to all Local Authorities in England asking about their services for people with neurological conditions. This report sets these findings in the context of other recent research and an earlier FOI conducted by Sue Ryder which was targeted at CCGs. The report makes recommendations to policy makers on how to improve care and support for people with neurological conditions.

In 2017, we teamed up with the Neurological Alliance to examine the health system in England from the perspective of people with neurological conditions. We found that the system was consistently failing to prioritise their needs, and consistently failing to deliver.

In 2016, we examined ‘out of hours’ end of life support across the country, and found that too many people are still missing out on the support they need and deserve.