We've played a key role in the above report by the Neurological Alliance.
At Sue Ryder, we often work in collaboration with other charities across the health and social care sectors to pursue objectives that we share. Our Policy and Public Affairs Manager for England, Duncan Lugton, shares how we've shaped and analysed the results of the country's biggest ever survey of people with neurological conditions.
It's my job to ensure that we collaborate and campaign with fellow not-for-profits in many different ways, sharing our end of life and neurological care knowledge, and working to bring about change.
Sometimes this collaboration can be quite broad, such as our work with the End of Life Care Coalition, which campaigns for better end of life care. In other areas, this collaboration can have a much more specific focus; for instance, our involvement with the Continuing Healthcare Alliance, which campaigns for improvements to the NHS Continuing Healthcare funding stream – or, in other words, to make sure our NHS continues to have the funds it needs to be fit for purpose.
Shaping key neurological research
One of the key coalitions we work with is the Neurological Alliance – an umbrella organisation for charities that care for those with neurological conditions. The Alliance helps provide a collective voice and direction for more than 80 charities, and Sue Ryder has always been closely involved with its work.
A clear example is our recent involvement in the biggest ever survey of people with neurological conditions in England, which is run by the Neurological Alliance. This survey aims to find out about their experiences and journeys through the health and care systems.
At Sue Ryder, our Policy and Public Affairs team helped formulate the survey questions, analyse the results and identify priority areas for improvement in light of its findings, which are detailed in the report 'Falling Short – How has neurology patient experience changed since 2014?'.
Expanding our influence
Sue Ryder now has a formal role in setting the direction of the Alliance's activity, following my election to the position of Vice Chair of the Policy Steering Group in the Neurological Alliance.
My new job title’s a bit of a mouthful, but what it means is that we at Sue Ryder now have an important seat at the table when the Alliance is discussing the big issues for neurology – and what to do about them.
Given the deep challenges facing neurological care at the moment, it is fantastic to be able to play a part in helping drive forward improvements.
Check out the survey's findings
The Neurological Alliance’s report 'Falling Short – How has neurology patient experience changed since 2014?' sets out the results of their survey of people with neurological conditions. It makes interesting reading for anyone working in neurology.
Read the 'Falling Short' report