Ways and means, a report by Demos, supported by Sue Ryder, explores the service journey at the end of life. This is the first time this has been explored from an individual’s perspective.
It is unacceptable that where you live, who your doctor is or what condition you have should pre-determine your experience of care at the end of your life. There remain a number of barriers and inequalities to accessing quality care, and we’re calling for system change to put this right.
View the full report: Ways and means
What we’re calling for
- Investment into integrated care which puts the needs and wishes of individuals as its heart.
- Improved training in end of life care both for specialists and generalists. We want to see end of life care included in Health Education England’s mandate to facilitate this change.
- Greater support and training for families and carers. At a very stressful and emotional time families and carers need much greater support in how to care for people at home and access care support. This includes the rapid implementation of funding for free social care at the end of life, which will prevent a minefield of assessments and people being unable to die as they choose.
My mother's end of life care experience in hospital would've been better if had they involved mum and our family in discussions about her care. This just simply didn't happen - there was a huge lack of communication.
Philippa Evans, daughter of a woman who was cared for at Sue Ryder - St John's Hospice
We want to work with decision makers to ensure these recommendations are implemented.
If you would like to support our campaign in parliament to improve quality and access to end of life care, get in touch with the Policy and Campaigns team who can help you raise awareness of the issue with your local MP.
Show your support for implementing the recommendations by tweeting your local MP using #dyingisntworking. Follow us @Sue_Ryder
If you are a parliamentarian and would like to find out more about our research please contact our policy team. We can arrange a meeting to brief you on the issues of our campaign and how we can work together to make end of life care a national priority for this government.