A time and a place investigates the elements of care that are important to individuals at the end of their life.
For too long the focus has been where people want to die rather than how. This report delves deeper into the components of care that people feel are important, and explores more fully what each of these means.
By deepening our knowledge of the individual elements, we are better able to understand what constitutes a desired death and to improve personalised care across all settings.
The care that people choose should not be compromised by trade-offs.
Whilst 63% of people said they wanted to die at home and 78% said that pain relief was a top priority for them, only 27% felt that home was a place where they would be free from pain during their final days.
Opening up this debate reveals that simply dying where you want does not ensure a good death.
View the full report: A time and a place (pdf)
What a time and place called for:
- There must be a focus on what type of care people want at the end of life, not location alone. Quality must be redefined based on what the care entails, not only where it takes place.
- People need to be supported to make informed choices at the end of life.
- Advanced care planning must be improved for all groups, and GPs and local authorities need to make available robust information about all end of life care support.
- The quality of care needs to improve across all settings to prevent people making care trade-offs and to achieve true personalisation. All care settings need to be more flexible and improve in order to offer care that meets people’s needs and preferences.
Download A time and a place
You can download the full report here: A time and a place (pdf)
View our press release and media coverage: People accept painful death to be with loved ones
We want to work with decision makers to ensure these recommendations are implemented.
If you would like to support our campaign in parliament to improve quality and access to end of life care, get in touch with the Policy and Campaigns team who can help you raise awareness of the issue with your local MP.
Show your support for implementing the recommendations by tweeting your local MP using #dyingisntworking. Follow us @Sue_Ryder
If you are a parliamentarian and would like to find out more about our research please contact our policy team. We can arrange a meeting to brief you on the issues of our campaign and how we can work together to make end of life care a national priority for this government.
View more about our campaign Dying isn't working and read the first report: Ways and means
Yvonne and Claire
Read Yvonne's story as described by her daughter Claire, who experienced end of life care for the first time when Yvonne was diagnosed with pancreatic cancer in September 2012. Yvonne and Claire
For more information please contact the Policy and Campaigns Team on firstname.lastname@example.org
Improve end of life care support the campaign @Sue_Ryder #dyingisntworking