Is there comprehensive support in your area?
Statistically, it’s unlikely.
Only 8% of clinical commissioning groups* (CCG) in England provide comprehensive, which includes immediately available 24/7 expert emotional support, practical advice and co-ordination in the form of a dedicated palliative helpline and co-ordination service for both dying people and their carers. Disappointingly, that’s only 14 areas out of 1801
The map below highlights the gaps in more detail. Use it to find out if your CCG is providing a dedicated 24/7 helpline for patients and their carers, as well as a 24/7 co-ordination centre.
What the map shows
= your area doesn’t have a dedicated 24/7 palliative helpline for patients and carers, or a dedicated palliative 24/7 co-ordination service.
= your area has some dedicated out-of-hours palliative advice, support and co-ordination for people dying and their carers.
= your area has a dedicated 24/7 palliative helpline for patients and carers, and a dedicated palliative 24/7 co-ordination service.
Using a freedom of information request we asked each CCG what services they had in place. We rated them according to whether or not they had the following service in their area:
- A dedicated palliative, nurse staffed expert telephone helpline for patients
- A palliative care co-ordination centre - including signposting to other services for patients
- A dedicated palliative, nurse staffed expert telephone helpline that includes signposting for carers
Only if areas had all 3 services 24/7 were they rated as comprehensive or yes in green. If a service is rated as partial in yellow, it offers some element of support to both patients and their carers out of hours. If not, we rated them as a no in red.
The national picture
56% of areas do not offer a dedicated 24/7 palliative helpline or co-ordination centre. This is 100 CCGs out of 180 respondents.
34% of areas have some out of hours palliative advice, support and co-ordination. This is 61 CCGs out of 180 respondents.
8% of areas have a dedicated 24/7 palliative helpline for patients and carers as well as a 24/7 co-ordination centred. This is 14 CCGs out of 180 respondents.
3% of CCGs provided unclear information. This is 5 out of 180 respondents.
If your local area doesn't have these services you can find out more about what is available from Dying Matters, a coalition of organisations brought together to raise awareness of dying and bereavement.
1 We received 180 responses from freedom of information requests sent to 211 CCGs