Our research

Palliative Initiatives in Neurological Care

In 2009, we evaluated our Palliative Initiatives in Neurological Care (PINC) programme. Our programme works to ensure that the complex and individual care needs of people with neurological conditions are met at the end of life.

Our programme grew and developed, and so it led to us piloting the three nationally recognised end of life care tools:

  • Supportive Care Register
  • Liverpool Care Pathway
  • Preferred Priorities for Care

Working with the University of Nottingham

Following a thorough evaluation by the Sue Ryder Care Centre for the Study of Supportive, Palliative and End of Life Care work began to then put into practice what we learnt. It also meant we expanded PINC to develop a co-ordinated End of Life and Bereavement Care programme across our neurological and specialist palliative care settings.

We continue to use the Department of Health (DOH) tools in our neurological centres so we keep giving great palliative end of life care. These tools include advance care planning and proactively identifying individuals with palliative care needs, using the Supportive Care Register.

Our neurological documentation, as part of our approach to personalisation, supports choice in end of life care preferences. We continually audit the outcomes on this aspect of care delivery.

Our Heads of Care in our neurological centres reviewed our End of Life Care Policy to make sure we used what we learnt from PINC, and that the DOH best practice tools became part of practice in all our neurological centres.

Care personalisation

In 2011, we launched Tailor Made: The Future of Care for those who need it most. Tailor Made is a Demos report, funded by Sue Ryder, which explores the future of personalised care at a time of radical social care and health reform. This report outlines the experiences of individuals receiving care from us and explores what being treated in a personalised way means.